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Information sheets

Here, you'll find all of HemiHelp's leaflets. If you'd prefer to have a paper copy, you can order as many leaflets as you need using our Publications order form, or download our leaflets in pdf format below and print them out.

When reading these leaflets please do bear in mind that the difficulties faced by children and young people with hemiplegia vary enormously in range and severity, and that some leaflets deal with more serious problems, which affect only a minority of people with hemiplegia.

Please also keep an eye on the Latest news section of our website, where we post details of new guides and booklets produced by other organisations.

Hemiplegia

Education

  • Early years education
    Guidelines for early years education workers on how to encourage development and independence in children with hemiplegia
    Download Early years education(pdf format)
  • Guidelines for teachers - Secondary education
    A booklet for secondary school teachers. Children with hemiplegia face not only physical challenges at school - many of them have additional problems which affect their school lives. The more teachers understand the effects of hemiplegia, the greater the help they can offer the child. Parents and carers also find these booklets give them more insight into their child’s condition.
    Download Guidelines for teachers - Primary school (pdf format)
  • The inclusion of children with cerebral palsy - including hemiplegia - in early years settings
    HemiHelp, in conjunction with Scope, has produced this leaflet which is a comprehensive run down of guidance for early years workers. Headings include "Handling a child with cerebral palsy", "Changing clothes", "Communication" and "Playing and learning".
    Download The inclusion of children with cerebral palsy - including hemiplegia - in early years settings (pdf format)
  • Early communication for children with complex needs
    This is also produced in conjunction with Scope and is about early communication for children with complex needs and covers different strategies for communication between the child and their carer. Aimed at those with communication difficulties, it suggests strategies that include equipment and toys and seating and also lists further resources.
    Download Early communication for children with complex needs (pdf format)
  • Handwriting
    This information sheet has been writting by Rosemary Sassoon, a handwriting specialist, who has produced a number of fonts to help children learn to read and write.
    Download Early communication for children with complex needs (pdf format)

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Associated problems

  • Difficulties seeing.
    We explain some of the difficulties vision and perception.
    Download Early communication for children with complex needs (pdf format)
  • Epilepsy and hemiplegia
    Over one in five children with hemiplegia also have epilepsy.
    Download Coping with behaviour problems (pdf format)
  • Emotions and behaviour
    We explain some of the difficulties affecting emotions and behaviours and suggestion some techniquest that could help.
      Download Coping with behaviour problems (pdf format)
  • Coping with behaviour problems
    Research has demonstrated that problems associated with hemiplegia can be more disabling than the hemiplegia itself and behaviour problems could certainly fall into this category. But how do you cope day to day? Written by a child psychologist these excellent strategies look at how your response can have a huge impact on the child.
    Download Coping with behaviour problems (pdf format)

Treatments

  • Botulinum Toxin and Hemiplegia
    A guide to the use of Botulinum Toxin injections as part of a movement therapy programme.
    Download Botulinum Toxin and Hemiplegia (pdf format)
  • Orthopaedic surgery for hemiplegia
    Hemiplegia often causes tightening of muscles which, if unchecked, can lead to serious deformity in the affected limbs. For some children physiotherapy and possibly splinting are effective in reducing this problem, but for others surgical correction needs to be considered. A Consultant Orthopaedic Surgeon discusses the procedures used.
    Download Orthopaedic surgery for hemiplegia (pdf format)
  • Ankle and foot splints or othoses (AFOs)
    Splinting is one of the most common treatments for the impaired gait often associated with hemiplegia. An experienced orthotist explains the various types of splint and how they work.
    Download Foot and ankle splints (pdf format)
  • Upper Limb Splinting
    More information about splinting, this time looking at splints used on the arm, shoulder, elbow, wrist or hand. This informatino sheet explains how different types of splint are used and what they do.
    Download Upper Limb Splinting (pdf format)


Everyday living

  • Equipment
    From cutlery to climbing frames. An extensive list of things to make the child’s everyday life easier, and where to get them.
    Download Equipment (pdf format)
  • Dressing
    Hints on helping the child become more independent, and where to find the clothes that will make it easier.
    Download Dressing (pdf format)
  • Shoes
    Finding suitable footwear is one of the most common problems faced by parents and carers of children and young people with hemiplegia. This lists companies who will provide odd sized pairs, Velcro fastenings etc.
    Download Dressing (pdf format)
  • Shoe Lacing
    Yes, you can do it one-handed (diagrams supplied). Or do you prefer stretchy laces? All you ever wanted to know about this tricky problem.
    Download Dressing (pdf format)
  • Computers and ICT
    Compiled with the help of Abilitynet and teaching advisers, this information sheet offers children and adults with hemiplegia some tips on adapting a computer to meet their needs.
    Download Dressing (pdf format)

Activities and social life

  • Getting active
    A look at how HemiHelp members get active and a list of organisations that could help your family access a new sport or hobby.
    Download A sporting chance (pdf format)
  • Staying active
    HemiHelp members share ideas about how to stay active and a list of useful contacts give.
    Download A sporting chance (pdf format)
  • Cycling
    Children of all ages love to ride a bike and children and young people with hemiplegia are no different, though they may take longer to learn and some may need a three-wheeler or other specialised bike. This leaflet will help them get started.
    Download Bikes (pdf format)
  • Music
    A weak arm may seem rather a hindrance to playing a musical instrument, but many instruments can be played with one hand, or hands of differing strengths, and the pleasure of music making may encourage the child to make more use of their affected hand.
    Download Music (pdf format)
  • Friendships and relationships
    Outlines the different aspects of making friends and having relationships, considering the difficulties that some people with hemiplegia may have with self-esteem and social interactions.
    Download Driving (pdf format)
  • Driving
    Many people with hemiplegia are able to drive a car, providing it has automatic gears, power steering and steering and indicator adaptations. Where to go for advice, assessment and instruction.
    Download Driving (pdf format)

Financial help, employment and legislation

  • It's for your benefit
    A guide to some benefits, tax credits and other financial help
  • Guidelines for completing DLA forms
    Straightforward, step-by-step instructions to guide you through the complicated procedure of filling out the Disabled Living Allowance Application Form.
    Download Guidelines for completing DLA forms (pdf format)
  • Grants and funding for families and individuals
    A list of organisations offering families with disabled children or adults with disabilities support with everyday living, purchasing musical instruments and much more.
    Download New legislation on disability and Special Educational Needs (pdf format)
  • Benefits and financial help for adults
    Some hints on claiming DLA, income-related benefits, guidance on housing and social care and details of financial support for those remaining in education post-16.
    Download New legislation on disability and Special Educational Needs (pdf format)
  • Getting into work
    A look at what issues arise when looking for work and some suggestions on how to apply for jobs and prepare for interviews. 
    Download Getting into work(pdf format)

Useful contacts

  • Useful contacts UK
    Organisations members might find helpful, dealing with everything from benefits to education as well as equipment.
    Download Useful names and addresses (pdf format)
  • Useful contacts Scotland
    Organisations members might find helpful, dealing with everything from benefits to education as well as equipment.
    Download Useful names and addresses (pdf format)

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