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HemiHelp services

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Magazine

Our quarterly magazine is full of the latest information and news. It gives families and professionals the opportunity to learn more about treatments, activities and tips about everyday life. Have you ever thought about writing an article for our magazine? We need your letters and articles to ensure that our magazine continues to provide our members with information, support and encouragement, so please write or email info@hemihelp.org.uk. NB to receive the Magazine you must be a member of HemiHelp.

Website and Forum

Visit www.hemihelp.org.uk and check out our website for all our latest news and events. The site includes all our information sheets and a forum where parents, professionals and people with hemiplegia share their experiences with others.

The Hemiplegia Handbook

A practical guide for parents and professionals that provides an overview of living with hemiplegia with straightforward explanations of potential causes and the different management options, with clear descriptions of approaches to therapy. You can order a copy from our online shop or by contacting the office on 0345 120 3713 / support@hemihelp.org.uk NB HemiHelp members will get a discount.

Primary Schools Pack

This pack contains information and guidance for teachers on a range of issues to help them support children with hemiplegia throughout primary school. It can be adapted and added to for the child’s individual needs. Parents may also find this pack useful. You can order your pack from our online shop or by contacting the office on 0345 120 3713 / support@hemihelp.org.uk

Public Affairs Updates

A quarterly e-mail summary of news and policy changes relating to health, education, welfare and disability to get you up-to-date on important issues that may affect you and to know how to have your say in the making of policy.

Training for schools

Training about hemiplegia and how to support pupils with the condition. Schools  are charged £100 plus travel expenses for this service. If you think your child's school may be interested in this get them to contact us to arrange a training session.

Get support

Helpline

Fully trained volunteers with personal experience of hemiplegia staff our Helpline 10am-12pm and 7pm-9pm on Tuesdays and Thursdays every week during school term time. Whether you would like to talk through some of your concerns with someone or need some information on any aspect of hemiplegia you can call our Helpline on 0345 123 2372 or email at helpline@hemihelp.org.uk

Family Back Up Service

A team of qualified professionals with personal experience of hemiplegia who visit families at their homes if they need extra one-to-one practical and emotional support. NB you must be a member of HemiHelp to use this service. This service is available throughout England, Wales and Scotland.

Transition Service (for young adults aged 16-25)

We have a transition support service for young adults moving from education to employment, higher education and/or independent living that provides one-to-one support from a Transition Adviser, work placements and employment workshops. If you need some extra help with any of these aspects our mentoring scheme will match you up with an adult with hemiplegia for one-to-one and face-to-face personalised support over a longer period of time. Contact our Transition Adviser Lildonia Lawrence at lildonia@hemihelp.org.uk or 07754 103340 for more information. 

Make contact with others

Fun Days

We hold hugely popular regional “Try It” activity days, where children with hemiplegia and their siblings can try out activities in a comfortable environment with their families around them. It is a great opportunity for your child and you to meet other families in a similar situation. And most importantly it is a chance to have some fun!

Conferences for parents

We run a regional conference programme for parents that provides the latest information on medical, educational and social aspects of living with hemiplegia. Parents/carers have the opportunity to meet other families in their region and share their experiences.

Conferences for professionals

Our regional conference programme for professionals aims to increase awareness about hemiplegia and share knowledge and best practice about the condition and associated therapies. A great opportunity to hear the latest developments in the management of hemiplegia and network with other professionals.

Creative Workshops

We hold Creative Workshops across the country, where children and their families can get together in an informal, friendly atmosphere. Workshops may incorporate music and include trying out a range of different instruments. Drama and creative movement workshops are fun and engaging sessions for children of all ages.

Regional Reach Groups

Would you like to be able to meet and share your experiences with other families in your area? We have a number of groups getting together on a regular basis across the U.K. It is a great opportunity for you and your child(ren) to meet others and share experiences. NB to become part of your Regional Reach Group you must be a member of HemiHelp.

Pen Pals (for children 5+ yrs)

Would your child like a pen pal to share their experiences with another child or young person? Our pen pal scheme can put your child in touch with others of a similar age so they can share experiences and hopefully form lasting friendships. NB to take advantage of the Pen Pal Scheme you must be a member of HemiHelp.

Online social media

Follow us on Twitter @HemiHelp for daily updates about events, new opportunities and all the latest information relevant to you. Join the HemiHelp Facebook Group to share tips, info and experiences with other parents or young adults with hemiplegia (type ‘HemiHelp’ into the search box and be part of a community of over 1,700 people!). We also have a charity Facebook page you can “like” to get lots of useful information and links to stay up-to-date. Subscribe to the HemiHelp YouTube channel to see videos featuring children with hemiplegia and their parents www.youtube.com/hemihelp

Support us

Volunteering and fundraising

Do you have any time to spare? Would you like to help improve the information and support provided to families affected by hemiplegia? Why not request a volunteer form or a fundraising pack? Please contact the HemiHelp office for further information on how you can help us: 0345 120 3713/ 0207 840 0159 or email the office at fundraising@hemihelp.org.uk.

Join us today!

If you aren’t a HemiHelp member yet, join us to access the full range of services and to get discounts on publications and events. You can find more information here

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