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Links

This page contains some links to websites that you might find useful or informative. Find more links in the Useful names and addresses section.

Alternating hemiplegia

Alternating Hemiplegia of Childhood Foundation A US based non-profit, tax exempt organisation run by parents of children with alternating hemiplegia.

Assistive technology

Axistive Assistive technology news website.

Benefits

FundingCaring Includes information about financial help for the families of disabled children.

Brain injury

Brain and Spine Foundation Charity that develops research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine.

The Neurological Alliance is the only collective voice for more than 70 national and regional brain and spine organisations working together to make life better for 8 million children, young people and adults in England with a neurological condition.

Brainwave Therapy for Children with Developmental Delay whether caused by Cerebral Palsy, Genetic Disorder or Brain Injury.

Children's Brain Injury Trust The Child Brain Injury Trust (Cbit) supports children, young people and families affected by an acquired brain injury to enable them to achieve their potential.

Cerebral Palsy

Northern Ireland Cerebral Palsy Register Children and Young People with Cerebral Palsy in Northern Ireland – Birth Years 1977-1997. A Comprehensive Report from the Northern Ireland Cerebral Palsy Register (2005) by Parkes, Dolk & Hill, QUB. Scope Scope is a disability organisation in England and Wales whose focus is people with cerebral palsy.

Complementary therapy

The Blue Wren Project This is a not-for-profit social enterprise to bring Complementary Therapies to people who might not normally be able to access them. Set up by a HemiHelp member.  

Conductive Education

Megan Baker House A charity providing free Conductive Education services to children and teenagers with motor disabilities.

Counselling

Counselling Directory Use this online resource to find a counsellor or psychotherapist near you. 

Directories

Ableize Disability Directory Resource directory of UK adult and children's disability services. Includes advice and information, access, recreation and sports, plus the arts and education also information on specific disabilities and updated news.

Therapy Directory Resource directory to connect with professional therapists

Education

ACE (Advisory Centre For Education)

CSIE (Centre for Studies on Inclusive Education) 

IPSEA (Independent Panel for special Education Advice)

Independent Schools Council

NASEN (National Association for Special Education Needs)

Network 81

Never Ending Stories Creative and inspiring audio stories that enhance children's understanding and imagination

Rathbone Community Industry 

Skill

Stepping Stones School School for children with hemiplegia based in Hindhead, Surrey.

Supporting Head Injured Pupils in School (SHIPS) SHIPS offers dynamic assessment of the classroom behaviour of children and young people who have sustained an acquired brain injury.

Thomas Wolsey School Special school that holds an annual Hemiplegia Awareness Morning. Based in Ipswich.

Trust-Ed Trust-Ed's aim is to provide educational services for young people with acquired brain injury.

Equipment

EQUIP EQUIP contains links to quality-checked health and social care information for the UK public and national support groups and organisations and also local information for the West Midlands region.

Association of Wheelchair Children The Association of Wheelchair Children run free wheelchair skills courses for young wheelchair users throughout the UK.

Grants and benefits

Family Welfare Association A registered charity whose services includde home and project based support to children and families, community-based mental health services, financial help for families in need and educational grants advice for disadvantaged people.

Healthcare

PrivateOT.ie An online healthcare directory based in Ireland.

Hemiplegia

Harry's Hemiplegia A site set up by parents of baby Harry, who has hemiplegia. It aims to help other parents by sharing their family's experiences.

Katy's Web A website run by young HemiHelp member Katy Roberts. Through the site, Katy posts updates on what she's been up to and stays in contact with other young people from around the world.

Infantile Spasms

Infantile spasms A site set up by parents of a child with 'Infantile Spasms' - a very serious form of epilepsy. It aims to be a 'one stop shop' for information on Infantile Spasms / West Syndrome and offers advice on the condition, treatment, medications and research. 

Performing arts

Herts Inclusive Theatre company An award winning inclusive theatre company that gives children and young people the opportunity to participate in dance, drama and music. The Orpheus Centre The Orpheus Centre is a residential performing arts centre for young disabled adults based in Godstone, Surrey. The centre caters for the 18 - 25 age range and offers a mixture of performing arts and independent living skills.

Physiotherapy

Breathe Arts health Research is a spin-out organisation from Guy’s and St Thomas’ Charity (GSTC) and currently designs and delivers a Performing Arts Programme. They use the arts to improve health and well being.

Potty/toilet training

The UK's leading childhood continence charity ERIC has lots of information and useful resources on their website to help you manage your child's wetting and soiling problems. Scope also has a useful fact sheet about this topic.

Self help and support

http://www.ukselfhelp.info/ Website of the Directory of National Self Help Groups and Support Organisations, with links to groups for all kinds of medical conditions.

Sports

KEEN London

KEEN Oxford KEEN - Kids Enjoy Exercise Now - provides sporting and recreational activities for disabled children and young adults in London, Oxford and York.

Travel

Caravanable A list of campsites with facilities for the disabled.

Other

Optimist World Inspiring stories that show the best of human spirit, reveal the goodness of man's nature and actions that illustrate a genuine desire by many to improve the world we live in

Other conditions

The Meningitis Trust offers life-long support to anyone who has been affected by meningitis or meningococcal septicaemia. Their support includes home visits, counselling, creative therapies (children), one-to-one support and family days. They can also provide practical and financial support through their financial grant scheme.

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