Links
This page contains some links to websites that you might find useful or informative. Find more links in the Useful names and addresses section.
Alternating hemiplegia
Alternating Hemiplegia of Childhood Foundation A US based non-profit, tax exempt organisation run by parents of children with alternating hemiplegia.
Assistive technology
Axistive Assistive technology news website.
Benefits
FundingCaring Includes information about financial help for the families of disabled children.
Brain injury
Brain and Spine Foundation Charity that develops research, education and information programmes aimed at improving the prevention, treatment and care of people affected by disorders of the brain and spine. Brainwave Therapy for Children with Developmental Delay whether caused by Cerebral Palsy, Genetic Disorder or Brain Injury. Children's Brain Injury Trust The Child Brain Injury Trust (Cbit) supports children, young people and families affected by an acquired brain injury to enable them to achieve their potential. Snowdrop Snowdrop are consultants in child development who specialise in providing programmes of rehabilitation for children who suffer developmental difficulties. Those difficulties may be caused by brain injury or by sociocultural sources and might express themselves in many ways, such as cerebral palsy or autism, or more specific problems such as dyslexia, dysgraphia, dyspraxia or specific language impairment (SLI).
Cerebral Palsy
Northern Ireland Cerebral Palsy Register Children and Young People with Cerebral Palsy in Northern Ireland – Birth Years 1977-1997. A Comprehensive Report from the Northern Ireland Cerebral Palsy Register (2005) by Parkes, Dolk & Hill, QUB. Scope Scope is a disability organisation in England and Wales whose focus is people with cerebral palsy.
Complementary therapy
The Blue Wren Project This is a not-for-profit social enterprise to bring Complementary Therapies to people who might not normally be able to access them. Set up by a HemiHelp member.
Conductive Education
Megan Baker House A charity providing free Conductive Education services to children and teenagers with motor disabilities.
Directories
Ableize Disability Directory Resource directory of UK adult and children's disability services. Includes advice and information, access, recreation and sports, plus the arts and education also information on specific disabilities and updated news.
Disability
Capability Scotland One of Scotland's leading disability organisations providing a diverse range of services including community living, day and residential services, employment, respite/short breaks, therapy, education and learning, family support and activities.
Education
ACE (Advisory Centre For Education) CSIE (Centre for Studies on Inclusive Education) Don't suffer in silence This website is intended to show pupils, their families and teachers how to tackle bullying. It gives new ideas, practical techniques and the valuable experiences of those who have been bullied, or have even bullied others. IPSEA (Independent Panel for special Education Advice) Independent Schools Council NASEN (National Association for Special Education Needs)Network 81 Rathbone Community Industry Skill Stepping Stones School School for children with hemiplegia based in Hindhead, Surrey. Supporting Head Injured Pupils in School (SHIPS) SHIPS offers dynamic assessment of the classroom behaviour of children and young people who have sustained an acquired brain injury. Thomas Wolsey School Special school that holds an annual Hemiplegia Awareness Morning. Based in Ipswich. Trust-Ed Trust-Ed's aim is to provide educational services for young people with acquired brain injury.
Equipment
Special Needs Toys Online retailer specialising in toys for children with disabilities. Hatchbacks Footwear Special Shoes for Special Needs - sells shoes for use with AFOs. EQUIP EQUIP contains links to quality-checked health and social care information for the UK public and national support groups and organisations and also local information for the West Midlands region. Association of Wheelchair Children The Association of Wheelchair Children run free wheelchair skills courses for young wheelchair users throughout the UK.
Grants and benefits
Family Welfare Association A registered charity whose services includde home and project based support to children and families, community-based mental health services, financial help for families in need and educational grants advice for disadvantaged people.
Healthcare
PrivateOT.ie An online healthcare directory based in Ireland.
Hemiplegia
Harry's Hemiplegia A site set up by parents of baby Harry, who has hemiplegia. It aims to help other parents by sharing their family's experiences.
Infantile Spasms
Infantile spasms A site set up by parents of a child with 'Infantile Spasms' - a very serious form of epilepsy. It aims to be a 'one stop shop' for information on Infantile Spasms / West Syndrome and offers advice on the condition, treatment, medications and research.
Performing arts
The Orpheus Centre The Orpheus Centre is a residential performing arts centre for young disabled adults based in Godstone, Surrey. The centre caters for the 18 - 25 age range and offers a mixture of performing arts and independent living skills.
Physiotherapy
Family Physio An independent physio service for babies, children and adolescents in their own homes. Family Physio works within a 20 mile radius of Amersham, Buckinghamshire.
Self help and support
www.ukselfhelp.info Website of the Directory of National Self Help Groups and Support Organisations, with links to groups for all kinds of medical conditions.
Sports
KEEN London KEEN Oxford KEEN - Kids Enjoy Exercise Now - provides sporting and recreational activities for disabled children and young adults in London, Oxford and York.
Travel
Caravanable A list of campsites with facilities for the disabled.
Other
Optimist World Inspiring stories that show the best of human spirit, reveal the goodness of man's nature and actions that illustrate a genuine desire by many to improve the world we live in
