Action on Hearing Loss - formerly Royal National Institute for Deaf People (RNID) - Tel: 020 7296 8000 Textphone: 020 7296 8001 Email: email@example.com Website: www.actiononhearingloss.org.uk UK wide support for anyone with hearing loss.
AFASIC (Association for all Speech Impaired Children) - Tel: 020 7490 9410 Helpline: 08453 55 55 77 Website: www.afasic.org.uk National offices in Wales, Scotland and Northern Ireland. Offers downloads, publications, local groups, parent support forums, courses, workshops, activities for young people and a helpline.
Brain and Spine Foundation - Tel: 0207 793 5900 Office email: firstname.lastname@example.org Helpline: 0808 808 1000, Helpline email: email@example.com Website: www.brainandspine.org.uk Produces leaflets and other information.
British Dyslexia Association - Helpline: 0845 251 9002 Email: firstname.lastname@example.org Website: www.bdadyslexia.org.uk A large number of local associations and support groups plus a wide range of information sheets.
Cerebra - Tel: 01267 244 200 Helpline: 0800 328 11 59 Email: email@example.com Website: www.cerebra.org.uk A charity that offers information and support for parents, carers and others involved with any child or young person with a brain related condition. It has a range of factsheets, runs a postal book library, a sleep therapy service and has a number of regional offices. It can give grants for certain kinds of equipment and therapy.
The Challenging Behaviour Foundation (CBF) - Tel: (Family Support Line) 0845 602 7885 Email: firstname.lastname@example.org Website: www.challengingbehaviour.org.uk A charity specialising in severe learning disabilities and behaviour described as challenging. They work with families and professionals supporting children and adults across the UK.
The Encephalitis Society - Helpline: 01653 699 599 Tel: 01653 692 583 Website: www.encephalitis.info Email: email@example.com Provides support and information for people affected by encephalitis (inflammation of the brain).
Epilepsy Action - Tel: 0113 210 8800 Helpline: 0808 800 5050 Email: firstname.lastname@example.org Helpline email: email@example.com Website: www.epilepsy.org.uk Produces a number of books and leaflets plus advice for parents, patients and the general public. There are many local support groups throughout UK.
ERIC (Education and Resources for Improving Childhood Continence) - Tel: 0117 960 3060 Helpline: 0845 370 8008 Email: firstname.lastname@example.org Website: www.eric.org.uk Provides information and advice on potty training, as well as ongoing wetting and soiling.
Headway - The Brain Injury Association - Tel: 0115 924 0800 Helpline: 0808 800 2244 Email: email@example.com Website: www.headway.org.uk Provides information, support and services to people with a brain injury, their families and carers.
Hyperactive Childrens’ Support Group - Tel: 01243 539 966 Email: firstname.lastname@example.org Website: www.hacsg.org.uk Helps ADHD/Hyperactive children and their families, promotes a dietary approach to addressing hyperactivity.
Look (National Federation of Families with Visually Impaired Children) - Tel: 0121 428 5038 Email: email@example.com Website: www.look-uk.org Organises local groups of families for sharing information and they have a range of information and support.
MENCAP - Tel: 020 7454 0454 Helpline: 0808 808 1111 Email: firstname.lastname@example.org Website: www.mencap.org.uk Mencap works with people with learning disabilities to change laws, challenge prejudice and support them to live their lives as they choose.
National Autistic Society - Tel: 020 7833 2299 Helpline: 0845 070 4004 Email: email@example.com Website: www.autism.org.uk Aims to provide education, treatment, welfare and care to people with autism and related conditions and their families.
National Deaf Children’s Society - Tel: 020 7490 8656 Email: firstname.lastname@example.org Helpline: 0808 800 8880 Email: email@example.com Website: www.ndcs.org.uk Provides educational and technical advice to families of deaf children and young people. There are 120 local groups which organise social activities and fundraising.
Newlife - Tel: 01543 462 777 Email: firstname.lastname@example.org Website: www.newlifecharity.co.uk Direct help and care for sick and disabled babies, children and families. They have information to help parents through diagnosis.
RNIB (Royal National Institute for the Blind) - Tel: 0303 123 9999 Email: email@example.com Website: www.rnib.org.uk Offers advice and support to people who are blind and partially sighted in the UK.
Shine (new name for Association for Spina Bifida and Hydrocephalus) – Tel: 01733 555988 Email: firstname.lastname@example.org Website: www.shinecharity.org.uk A range of specialist services covering health, education, support and development.
Stroke Association - Tel: 020 7566 0300 Helpline: 0303 303 3100 Email: email@example.com Website: www.stroke.org.uk Information and support services, much of which is relevant to hemiplegia. Local support throughout the UK.
Young Epilepsy - Confidential enquiry line 01342 831342 Email: firstname.lastname@example.org Website: www.ncype.org.uk Information service aims to provide families and professionals with information, education and training about epilepsy in young people.
YoungMinds - Tel: 020 7089 5050 Helpline: 0808 802 5544 Email: email@example.com Website: www.youngminds.org.uk UK charity aiming to improve emotional well-being and mental health of children and young people. Has a telephone service providing information and advice for anyone with concerns about the mental health of a child or young person.