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Other organisations

Action on Hearing Loss - formerly Royal National Institute for Deaf People (RNID) - Tel: 020 7296 8000 Textphone: 020 7296 8001 Email: Website: UK wide support for anyone with hearing loss.

AFASIC (Association for all Speech Impaired Children) - Tel: 020 7490 9410 Helpline: 08453 55 55 77 Website: National offices in Wales, Scotland and Northern Ireland. Offers downloads, publications, local groups, parent support forums, courses, workshops, activities for young people and a helpline.

BLISS - Tel: 020 7378 1122 Helpline: 0500 618 140 Email: Website: Helpline and support for the parents of premature or sick babies.

Brain and Spine Foundation - Tel: 0207 793 5900 Office email: Helpline: 0808 808 1000, Helpline email: Website: Produces leaflets and other information.

British Dyslexia Association - Helpline: 0845 251 9002 Email: Website: A large number of local associations and support groups plus a wide range of information sheets.

Child Brain Injury Trust - Tel: 01869 341 075 Helpline: 0303 3032248 Email: Website: Provides support and information to parents and professionals.

Cerebra - Tel: 01267 244 200 Helpline: 0800 328 11 59 Email: Website: A charity that offers information and support for parents, carers and others involved with any child or young person with a brain related condition. It has a range of factsheets, runs a postal book library, a sleep therapy service and has a number of regional offices. It can give grants for certain kinds of equipment and therapy.

The Challenging Behaviour Foundation (CBF) - Tel: (Family Support Line) 0845 602 7885 Email: Website: A charity specialising in severe learning disabilities and behaviour described as challenging. They work with families and professionals supporting children and adults across the UK.

Different Strokes - Tel: 0845 130 7172 or 01908 317 618 Email: Website: Support for young stroke survivors, including young adults.

Dyslexia Action - Tel: 01784 222 300 Email: Website: Training and assessment centres around the country.

The Dyspraxia Foundation - Helpline: 01462 454 986 Email: Website: Support and advice. Local co-ordinators.

The Encephalitis Society - Helpline: 01653 699 599 Tel: 01653 692 583 Website: Email: Provides support and information for people affected by encephalitis (inflammation of the brain).

Epilepsy Action - Tel: 0113 210 8800 Helpline: 0808 800 5050 Email: Helpline email: Website: Produces a number of books and leaflets plus advice for parents, patients and the general public. There are many local support groups throughout UK.

ERIC (Education and Resources for Improving Childhood Continence) - Tel: 0117 960 3060 Helpline: 0845 370 8008 Email: Website: Provides information and advice on potty training, as well as ongoing wetting and soiling.

Headway - The Brain Injury Association - Tel: 0115 924 0800 Helpline: 0808 800 2244 Email: Website: Provides information, support and services to people with a brain injury, their families and carers.

Hyperactive Childrens’ Support Group - Tel: 01243 539 966 Email: Website: Helps ADHD/Hyperactive children and their families, promotes a dietary approach to addressing hyperactivity.

I CAN – Tel: 0845 2254073 Email: Website: UK charity that helps children to communicate.

Look (National Federation of Families with Visually Impaired Children) - Tel: 0121 428 5038 Email: Website: Organises local groups of families for sharing information and they have a range of information and support.

MENCAP - Tel: 020 7454 0454 Helpline: 0808 808 1111 Email: Website: Mencap works with people with learning disabilities to change laws, challenge prejudice and support them to live their lives as they choose.

National Autistic Society - Tel: 020 7833 2299 Helpline: 0845 070 4004 Email: Website: Aims to provide education, treatment, welfare and care to people with autism and related conditions and their families.

National Deaf Children’s Society - Tel: 020 7490 8656 Email: Helpline: 0808 800 8880 Email: Website: Provides educational and technical advice to families of deaf children and young people. There are 120 local groups which organise social activities and fundraising.

Newlife - Tel: 01543 462 777 Email: Website: Direct help and care for sick and disabled babies, children and families. They have information to help parents through diagnosis.

RNIB (Royal National Institute for the Blind) - Tel: 0303 123 9999 Email: Website: Offers advice and support to people who are blind and partially sighted in the UK.

Shine (new name for Association for Spina Bifida and Hydrocephalus) – Tel: 01733 555988 Email: Website: A range of specialist services covering health, education, support and development.

Steps Charity Worldwide - Helpline: 01925 750 271 Email: Website: Support and information services for people with hip, leg or foot conditions.

Stroke Association - Tel: 020 7566 0300 Helpline: 0303 303 3100 Email: Website: Information and support services, much of which is relevant to hemiplegia. Local support throughout the UK.

Young Epilepsy - Confidential enquiry line 01342 831342 Email: Website: Information service aims to provide families and professionals with information, education and training about epilepsy in young people.

YoungMinds - Tel: 020 7089 5050 Helpline: 0808 802 5544 Email: Website: UK charity aiming to improve emotional well-being and mental health of children and young people. Has a telephone service providing information and advice for anyone with concerns about the mental health of a child or young person.

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