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Find out more about what we do: accessible version

This is an accessible version of a video that was filmed at our Fun Day at Chilham Castle in Kent, in summer 2007. Children with hemiplegia, and their parents talk about what HemiHelp means to them, and we explain more about HemiHelp's services.

See the Flash version of this video >>

John Adams, HemiHelp Chief ExecutiveJohn Adams, Chief Executive of HemiHelp, explains that HemiHelp is a small national charity, but we're growing.

We have about 3,500 members in the UK - about a third of the population of children and families living with hemiplegia. Our aim is to try and reach ALL families affected.

Alice Doyle, HemiHelp General ManagerAlice Doyle, HemiHelp's General Manager, explains that hemiplegia is a neurological condition, it affects up to one child in a thousand and the effects are similar to those of a stroke. The severity varies enormously from child to child.

Most children who have hemiplegia have it from birth, but some acquire it later in childhood.

Katy Wills, an adult with hemiplegiaKaty Wills, an adult with hemiplegia, says that hemiplegia can mean not being able to do what everyone else can do, like doing up your shoelaces or travelling on a bus or a train without help.
HemiHelp leaflet on epilepsy and hemiplegiaWe have a helpline run by trained parent volunteers, all of whom have first hand experience of living with hemiplegia.

Our newsletter is published quarterly and sent out to all of our family and professional members. It provides information about various aspects of living with hemiplegia and it's also a forum for families to tell their stories.

HemiHelp produces a wide range of literature covering various aspects of living with hemiplegia.

Parents at a workshopHemiHelp also runs conferences for parents and professionals, to promote learning about hemiplegia.

These parents attended a workshop at Chilham Fun Day, while the children were on a Treasure Hunt!

Two girls with hemiplegia at the Fun DayFun Days are a great chance for families to get together, and for children to try out new activities.

These girls say that they've had a great day and all the activities have been really fun. It's a really great way for everyone to just get together, do FUN things - and make some new friends!

A mum and dad at the Fun DayThis mum and dad at the Fun Day say that the HemiHelp message board is a great place to find out information and exchange it with other parents.

Parents have more experience of living with hemiplegia than the medical profession and they can explain things in lay terms. You can go onto the website and have a chat with someone else, and they'll explain it from a parent's point of view, which is a bit different.

A dad at the Fun DayThis dad at the fun day says his daughter goes to mainstream school, where she is unique - she's the only one with hemiplegia.

When she comes to Fun Days she becomes aware that there are lots of people with similar disabilities, who are overcoming them in their way. So she gets a lot of encouragement and her self esteem gets boosted by knowing that she's not alone.

A crowd of people at the Fun DayHemiHelp gets no funding at all from the Government, no statutory grants, so all of the money we spend on services is raised from voluntary donations.

Without that funding we can't do any of our work, and there is so much more we want to do, and so many more people we want to reach. But we can't do that without the essential funding, and we need everyone's help in raising that money.


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